lambert eaton myasthenic syndrome "LEMS" 101 words and what they ,,,,
101 words you will start to hear, This has been a year of firsts for Lambert-Eaton myasthenic syndrome (LEMS) patients. Two medications approved by the U.S. Food and Drug Administration became commercially available for patients. It is nearly unheard of to have approvals for a single rare disease within months of each other. Patients now have treatment options that are proven to be effective for LEMS. In June, I was asked to be a columnist for Lambert-Eaton News and “ LEMme Tell Ya ” was born. I never imagined writing a weekly column about my disease. In addition to my column, Lambert-Eaton News publishes updated information multiple times a week for LEMS patients, their families, and providers. There was little to no information about LEMS when I was diagnosed in 2016, and now there is a weekly newsletter! As we wrap up 2019, Lambert-Eaton News is taking patient information one step further by launching the Lambert-Eaton News Forums . The soft launch is this week! He